MYTALITY! PODCAST RESOURCE GUIDE
Adoption
American Adoptions.com, 1-800-955-4572
Adrenal Cancer
National Adrenal Diseases Foundation (NADF), rarediseases.org, dedicated to providing information, education, and support to patients diagnosed with adrenal diseases such Addison’s disease, Cushing’s syndrome, congenital adrenal hyperplasia, and cancer.
Nefkens Adrenal Cancer Foundation, nac.foundation.com; established to support research in adrenocortical cancer (ACC) with clinical impact, to support innovative research with the ultimate objective to break grounds in outcome, care, and cure of patients with ACC.
Lets Cure ACC, letscureacc.com, find information regarding the disease, find patients from around the world, and to assist physicians in finding better treatment options
Alcohol Addiction
Drug & Alcohol Crisis Hotline, 855-754-0996
Empowering the Miracle of Recovery. Empowerrecoverycenter.com
Alcoholics Anonymous
Aa.org
Al-Anon Family Groups
Al-anon.org
Alzheimer’s Disease
Alzheimer’s Association, alz.org
Ampullary Cancer
Even though ampullary cancer is closely related to pancreatic cancer, they are different in where they originate and are located. Patients can find support, however, through pancreatic cancer support organizations. Please see our resources under pancreatic cancer.
Anal Cancer
The Anal Cancer Foundation – analcancerfoundation.org. Dedicated to empowering anal cancer patients and accelerating prevention and research methods that eliminate anal cancer.
Analcancer.com. Provides tools to help you feel more confident and in control as you navigate your diagnosis.
Anxiety
Anxiety Hotline, 866-903-3787, through the Mental Health Hotline, mentalhealthhotline.org
Appendix Cancer
Appendix Cancer Pseudomyxoma Peritonei Research Foundation, acpmp.org, educates patients and physicians through conferences and symposia, funds grants for research to improve the understanding, diagnosis, and treatment of appendix cancer and pseudomyxoma peritonei, and to find a cure for every patient diagnosed with the diseases.
Bile Duct Cancer
Cholangiocarcinoma Foundation – cholangiocarcinoma.org. Dedicated to improving the quality of life for individuals with cholangiocarcinoma, offering resources like a patient-first approach, a specialist map, mentorship programs, and research funding. They also have virtual support groups and websites.
GI Cancers Alliance – gicancersalliance.org. Focuses on raising awareness, providing education, and advocating for individuals with GI cancers, including bile duct cancer.
Bladder Cancer
Bladder Cancer Advocacy Network (BCAN) – A leading organization dedicated to supporting people with bladder cancer, offering resources, support groups, and advocacy efforts. They also have a free support line for patients and loved ones.
American Bladder Cancer Society – Provides information and support for individuals and families affected by bladder cancer.
World Bladder Cancer Patient Coalition – A global organization connecting bladder cancer patient organizations and working to improve outcomes for patients worldwide.
Blood & Marrow Transplant
Blood & Marrow Transplant Information Network – bmtinfonet.org. Provides information and support to individuals undergoing or considering bone marrow transplantation.
Brain Cancer
National Brain Tumor Society (NBTS) – Brings together research and patient services, offering support and resources for patients, families, and caregivers during treatment. They also advocate for brain tumor research funding.
American Brain Tumor Association (ABTA) – Provides comprehensive information and support for brain tumor patients, families, and caregivers. They also have an online support community called Connections.
Pediatric Brain Tumor Foundation (PBTF) – Focuses on funding research to find cures for childhood brain cancers, providing support and education for affected families.
Glioblastoma Research Organization – Focuses on glioblastoma, a specific type of aggressive brain cancer and aims to raise awareness and funds for research.
Brain Tumor Network – Provides resources and support for individuals and families affected by brain tumors.
Breast Cancer
Breastcancer.org – Offers a comprehensive online resource with information about breast cancer, including different types, stages, treatments, and support options.
Breast Cancer Research Foundation – Focuses on funding research to prevent, diagnose, and treat breast cancer, including metastasis.
National Breast Cancer Foundation – Provides early detection, support, and education resources, including offering free mammograms
Susan G. Komen – Raises awareness and funds research for breast cancer, with a focus on supporting women and men who are affected.
Young Survival Coalition – Specifically supports young adults (ages 40 and under) diagnosed with breast cancer, providing resources and community support.
Breast Cancer Prevention Partners – bcpp.org, Works to prevent breast cancer before it starts by eliminating the toxic chemical linked to the disease.
Cancer – General Information & Support
American Cancer Society, cancer.org, (800) 227-2345
Imerman Angels, imermanangels.org, 866-IMERMAN (866-463-7626)
Non-profit that provides free, one-on-one cancer support and personalized mentoring for all cancer fighters, survivors, previvors, and caregivers
National Association for Rare Disorders – rarediseases.org
Livestrong – Offers free, confidential and personalized one-on-one support for anyone affected by cancer.
Henry Ford Health – Provides various support services, including men’s sexual health clinics, cancer support groups, and genetic counseling.
CanCare – Offers one-on-one cancer support through a network of volunteers who are cancer survivors.
Cancer Care – cancercare.org, helps those affected by cancer cope with the emotional and practical challenges of cancer.
Cancer 4 Wellness – 4cancerwellness.com, promotes a holistic approach to cancer wellness.
American Association for Cancer Research – Offers affiliate memberships to health professionals, survivors, advocates, and educators who support cancer research.
Stand Up to Cancer – standuptocancer.org, Raises awareness and funds research to detect and treat cancer with the aspiration to cure all patients.
Cervical Cancer
National Cervical Cancer Coalition (NCCC) – Provides support to women, families, and caregivers, advocating for cervical health through education and prevention. They have local chapters across the US & offer resources like free materials, information on screening and prevention, and quilt projects to share survivor stories.
Cervivor – A global community of cervical cancer patients, survivors, and thrivers who provide support, advocacy, and resources. They host events, offer stories from survivors, and advocate for ending the disease.
Foundation for Women’s Cancer (FWC) – Supports research, education, and public awareness of gynecologic cancers, including cervical cancer.
The Federal Cervical Cancer Collaborative (FCCC) – dceg.cancer.gov. Part of the Health Resources & Services Administration (HRSA), they develop resources to improve cervical cancer prevention, screening, and management in safety-net settings.
Children’s Cancer
See Pediatric Cancer.
Colorectal Cancer
Colorectal Cancer Alliance – Focuses on prevention, support, and research for colorectal cancer, offering resources like BlueHQ, a comprehensive support hub, and a team of certified patient support navigators.
Colon Cancer Foundation – Aims to reduce colorectal cancer and related deaths through research, awareness, and education.
COLONTOWN – Online community that provides private support groups for colorectal cancer patients, survivors, and caregivers, and offers educational resources.
Global Colon Cancer Association (GCCA) – Partners with other organizations to offer support groups, patient navigation, and clinical trial guidance, as well as financial help and helplines.
United Ostomy Associations of America – Connects individuals with peer-to-peer support, especially those who have had ostomy surgery.
Dementia
Alzheimer’s Association, 24/7 Hotline, 800-272-3900
Diabetes
American Diabetes Association, 800-232-3472, diabetes.org
Drug Addiction
Drug & Alcohol Crisis Hotline, 855-754-0996
Empowering the Miracle of Recovery. Empowerrecoverycenter.com
Esophageal Cancer
Esophageal Cancer Action Network – ecan.org
Esophageal Cancer Awareness – ecaware.org
Eye Cancer
See Melanoma – Ocular.
Financial Assistance & Resources – Cancer Patients
Kidney Cancer Association
Alex’s Lemonade Stand Foundation (ALSF) – Provides financial assistance to families, non-medical support, and connects them with other resources for pediatric cancer patients and their families.
Ronald McDonald House Charities – Offers housing for families of children undergoing medical treatment, helping them stay near their hospitalized child without the cost of hotel and food.
Pinky Swear Foundation – Provides financial relief to families facing childhood cancer, covering expenses ike housing, food, and transportation.
ZERO Prostate Cancer – Offers a wide range of support services, including online and in-person support groups, financial assistance, and educational resources.
CancerCare – Provides free support services for people with cancer, including resource navigation, counseling, and financial assistance.
Cancer Care Financial Assistance – Provides information on government assistance, pharmaceutical assistance programs, other cancer organizations, and general organizations that may be able to assist. They also have legal resources to protect certain rights related to employers, health insurance companies, government benefits, and estate planning.
CancerInsurance.com – cancerinsurance.com; flexoffers.com. Online source of supplemental cancer and critical illness insurance for individuals and families, establishing relationships with top-tier insurance carriers to offer supplemental insurance products.
Global Colon Cancer Association (GCCA) – Partners with other organizations to offer support groups, patient navigation, and clinical trial guidance, as well as financial help and helplines.
Ocular Melanoma Foundation (OMF) – Provides financial support, education, and advocacy for ocular melanoma patients, including financial assistance programs for travel, prosthetics, and free eye exams.
EyeMelanoma.org – Offers a variety of support resources, including virtual support groups, information on patient empowerment, financial assistance, and vision-related support.
A Cure in Sight (ACIS) – Focuses on education, research, and support for families affected by ocular melanoma, including a financial assistance program and access to a support community.
The SAMFund – Provides financial assistance grants to young adult cancer survivors of those currently going through treatment. Provide assistance to young adults as they regain momentum in their lives after cancer.
Scott’s Circle of Love – Scott Scchoenthal’s Circle of Love is finding families and lifting some of their burdens. Pay a mortgage or rent payment, hire a maid service for cancer fighters, provide snacks for chemo rooms, help pay utility bills.
Allyson Whitney Foundation – Empowers and fights the interests of young adults with rare cancers. Their vision is to improve the quality of life, as well as provide emotional support for patients. Provides individuals with ‘life interruption grants’ to ease their financial burden so that they can concentrate their energy on healing.
Ulman Foundation – Committed to helping young adults (ages 15-39) continue their education after their own cancer diagnosis or the diagnosis of a loved one. This is a program for college students to receive scholarships paid directly to the recipient’s school.
Cancer.net – Offers a variety of resources for anyone diagnosed with cancer. Offer a list of national and local service organizations, housing, travel assistance, and more.
Angel Flight West – Network of volunteer pilots that provide free medical transportation to those in need. Any transportation needed for medical care will be cost-free, even if in need of multiple trips.
SingleCare – Offers a guide to help patient and caregivers successfully manage the storage, dosage, and other circumstances related to cancer medication. Medication works best for cancer patients when given at the proper doses and times.
Southwest Airlines Medical Transportation Grant Program – Provides complimentary, round-trip tickets to nonprofit hospitals and medical transportation organizations to disburse to their patients. The program was created to provide much-needed assistance to medical patients and their family members who are traveling for specialized life-saving or life-changing medical care.
Triage Cancer Toolkit – Designed to help cancer survivors, patients, and caregivers understand the impact cancer treatment can have on their financial situation. The tool is meant to help empower and guide them to the information they need.
Testicular Cancer Society – Direct financial assistance for patients and immediate family currently in treatment
Testicular Cancer Awareness Foundation – Direct financial assistance for patients and immediate family currently in treatment.
Expect Miracles Foundation – Financial services against cancer.
Gallbladder Cancer
Cholangiocarcinoma Foundation – cholangiocarcinoma.org. Dedicated to improving the quality of life for individuals with cholangiocarcinoma, offering resources like a patient-first approach, a specialist map, mentorship programs, and research funding. They also have virtual support groups and websites.
GI Cancers Alliance – gicancersalliance.org. Focuses on raising awareness, providing education, and advocating for individuals with GI cancers, including bile duct cancer.
Gambling Addiction
Gamblers Anonymous, National Council on Public Gambling, 1-800-GAMBLER
Gamblersanonymous.org
Gastrointestinal Cancer
GI Cancers Alliance – gicancersalliance.org. Focuses on raising awareness, providing education, and advocating for individuals with GI cancers, including bile duct cancer.
Gestational Trophoblastic Disease
Stanford Health Care – Provides specialized care and treatment for gestational trophoblastic disease, including tailored treatment plans, fertility preservation, and support from a multidisciplinary team.
Dana-Farber Cancer Institute – Offers comprehensive services, including gynecologic medical oncologists, pathologists, and specialized care for fertility concerns.
Glioblastoma
Glioblastoma Research Organization – Focuses on glioblastoma, a specific type of aggressive brain cancer and aims to raise awareness and funds for research.
See also Brain Cancer.
Head & Neck Cancer
American Head and Neck Society (AHNS) – A professional organization for head and neck surgeons and related professionals, focusing on research, education, and clinical practice.
Head and Neck Cancer Alliance (HNCA) – Non-profit organization dedicated to promoting prevention, early detection, advocacy, patient programs, awareness, education, and research for head and neck cancer. They lead the annual Head & Neck Cancer Awareness Month.
Support for People with Oral and Head and Neck Cancer, Inc. (SPOHNC) – A patient support organization offering resources, support groups, and a national survivor network.
The Oral Cancer Foundation – a non-profit organization specifically focused on oral cancer awareness, education, and research
THANC Foundation – Provides information and support for patients with thyroid, head and neck cancer.
Hodgkins Lymphoma
Lymphoma Foundation of America – A national charity focusing on helping lymphoma & leukemia patients and families and funding research for a cure.
Lymphoma Research Foundation – lymphoma.org, to realize the promise of science to eradicate lymphoma and to serve the community touched by the disease.
The Leukemia & Lymphoma Society – lls.org
Intestinal Cancer
United Ostomy Associations of America – Connects individuals with peer-to-peer support, especially those who have had ostomy surgery.
See also Colorectal Cancer.
Kidney Disease & Kidney Cancer
National Kidney Foundation, 855-653-2273, kidney.org
Kidney Cancer Association – kidneycancer.org, resources to support through their one-on-one patient liaison program, learn about financial assistance resources, connect with other patients, caregivers, and more
KidneyCAN – kidneycan.org, promotes acceleration cures for kidney cancer.
Leukemia
Leukemia & Lymphoma Society, lls.org, 1-800-955-4572
Leukemia Research Foundation, leukemiarf.org, (847) 424-0600
Bone Marrow & Cancer Foundation
The Max Foundation – Provides support services to patients and families facing leukemia & other cancers
Childhood Leukemia Foundation –
Chronic Lymphocytic Leukemia (CLL) Society – Leading authority for Chronic Lymphocytic Leukemia (CLL) and Small Lymphocytic Lymphoma (SLL) patients, offering education, support, advocacy, and research.
Liver Disease & Cancer
American Liver Foundation (ALF) – Offers a variety of online and in-person support groups, including “Sharing the Journey” for people with liver disease and those awaiting liver transplant.
Hepatitis B Foundation (HBF) Liver Cancer Connect Program – Program specifically for individuals and families facing primary liver cancer. The program provides information on liver cancer types, diagnosis, staging, and treatment options.
Blue Faery: The Adrienne Wilson Liver Cancer Association – Dedicated online community for individuals living with hepatocellular carcinoma (HCC). Provides a space for people to share advice, find support, and connect with others who understand the challenges of living with liver cancer.
Global Liver Institute (GLI) – A resource for patients diagnosed with primary liver cancer and their families.
International Liver Cancer Association (ILCA) – A global organization focused on liver cancer research and education.
Lung Cancer
Lung Cancer Research Foundation (LCRF) – non-profit organization dedicated to improving lung cancer outcomes through research.
Lung Cancer Foundation of America (LCFA) – focuses on improving survivorship and funding transformative lung cancer research.
CancerCare – provides resources, education, and support for cancer patients and their families, including those with lung cancer
A Breath of Hope Lung Foundation (ABOH) – Offers support, resources, and educational programs for lung cancer patients and their families.
Lupus
Lupus Foundation of America, lupus.org,
Lymphoma
Lymphoma Foundation of America – A national charity focusing on helping lymphoma & leukemia patients and families and funding research for a cure.
Lymphoma Research Foundation – lymphoma.org, to realize the promise of science to eradicate lymphoma and to serve the community touched by the disease.
The Leukemia & Lymphoma Society – lls.org
Cutaneous Lymphoma Foundation – Offers online support, communities, and resources for individuals with cutaneous lymphoma
Medicare Assistance
1-800-MEDICARE (1-800-633-4227)
For specific billing questions and questions about your claims, medical records, or expenses, log into your secure Medicare account, or call Medicare at 1-800-MEDICARE
Melanoma – Ocular
American Melanoma Foundation (AMF) – Offers support, research funding, and educational resources, with a focus on specific treatment approaches for melanoma.
Ocular Melanoma Foundation (OMF) – Provides financial support, education, and advocacy for ocular melanoma patients, including financial assistance programs for travel, prosthetics, and free eye exams.
EyeMelanoma.org – Offers a variety of support resources, including virtual support groups, information on patient empowerment, financial assistance, and vision-related support.
A Cure in Sight (ACIS) – Focuses on education, research, and support for families affected by ocular melanoma, including a financial assistance program and access to a support community.
Eye Cancer Foundation – A non-profit organization dedicated to providing resources for patients and families affected by eye cancer, including ocular melanoma.
Melanoma Research Foundation (MRF) – Provides support through peer-to-peer networks like Imerman Angels and Patient True Talk, and offers educational resources and advocacy.
Melanoma Research Alliance (MRA) – Works to fund research, reduce side effects, and improve patient outcomes.
Melanoma – Skin
American Melanoma Foundation (AMF) – Offers support, research funding, and educational resources, with a focus on specific treatment approaches for melanoma.
Melanoma Research Foundation (MRF) – Provides support through peer-to-peer networks like Imerman Angels and Patient True Talk, and offers educational resources and advocacy.
Melanoma Research Alliance (MRA) – Works to fund research, reduce side effects, and improve patient outcomes.
The Skin Cancer Foundation – Provides education, advocacy, and resources for skin cancer prevention and treatment.
IMPACT Melanoma – Offers support groups, resources, and advocacy to reduce the incidence of melanoma.
Mental Health
Mental Health Hotline, 866-903-3787, mentalhealthoutline.org
Mesothelioma
Mesothelioma Applied Research Foundation – Dedicated to ending mesothelioma through research and support.
Mesothelioma Hope – Offers information, resources, and support for patients and families.
Asbestos Disease Awareness Organization – Focuses on preventing asbestos exposure and protecting victims.
The Mesothelioma Center – Provides support and resources for cancer patients & families.
Mesothelioma Recipes – mesotheliomarecipes.com
Mesothelioma Support Group – asbestos.com
Multiple Myeloma
Multiple Myeloma Resource Foundation – themmrf.org. Advances research and provides cancer support.
International Myeloma Foundation – myeloma.org
Health Tree Foundation – healthtree.org. Provides tools & programs to empower people with myeloma to live longer, better, and actively participate in research.
Neuroendocrine Tumors
Neuroendocrine Tumor Research Foundation (NETRF)
Non-Hodgkin Lymphoma
Lymphoma Foundation of America – A national charity focusing on helping lymphoma & leukemia patients and families and funding research for a cure.
Lymphoma Research Foundation – lymphoma.org, to realize the promise of science to eradicate lymphoma and to serve the community touched by the disease.
The Leukemia & Lymphoma Society – lls.org
Oligodendroglioma
Oligo Nation – Specializes in helping individuals with oligodendroglioma, a specific type of brain and spine tumor, by connecting them with specialized care and support.
Oral and Oropharyngeal Cancer
The Oral Cancer Foundation (OCF) – a non-profit organization specifically focused on oral cancer awareness, education, and research.
Support for People with Oral and Head & Neck Cancer (SPOHNC) – A patient directed organization providing emotional, physical, and humanistic support to those with oral, head, and neck cancers.
Mouth Cancer Foundation – Raises awareness for mouth and sinus cancers and works to increase knowledge about the conditions among healthcare professionals.
Ovarian Cancer
Ovarian Cancer Research Alliance (OCRA) – Provides support programs open to those impacted by all gynecologic cancers, including uterine cancer. They offer a weekly support series and other focused sessions throughout the year.
SHARE Cancer Support – A dedicated team of women with experience in gynecologic cancers providing a full range of support services. They offer live webinars and support groups, which are currently held online.
Endometrial Cancer Action Network for African-Americans (ECANA) – Specifically focuses on providing information and support for African-American women affected by endometrial cancer. They host a weekly virtual gathering and feature survivor stories and research updates on their website.
Foundation for Women’s Cancer (FWC) – Supports research, education, and public awareness of gynecologic cancers, including uterine cancer They also partner with NRG Oncology to make information about clinical trials available.
National Ovarian Cancer Coalition (NOCC) – Offers comprehensive resources, including peer support programs like the Teal Hearts Network, for individual with ovarian cancer and their caregivers. They also provide information, education, and advocacy to promote awareness and research.
Pancreatic Cancer
Pancreatic Cancer Action Network (PanCAN) – pancan.org. Offers free, personalized support, including case managers and information.
National Pancreatic Cancer Foundation (NPCF) – Provides financial assistance & support, npcf.org
Project Purple – projectpurple.org. A non-profit organization dedicated to supporting patients, raising awareness, and educating the world about pancreatic cancer.
Pediatric Cancer
Alex’s Lemonade Stand Foundation (ALSF) – Provides financial assistance to families, non-medical support, and connects them with other resources.
ALSF CORD Fund – Affiliated with Alex’s Lemonade Stand Foundation, supports research into pediatric spinal cord tumors, hoping to find cures for children.
American Childhood Cancer Organization (ACCO) – Support through online forums, peer support, and advocacy for research and funding.
Children’s Oncology Group – Conducts research on childhood and adolescent cancers, providing guidelines for survivors and other resources.
National Pediatric Cancer Foundation – Funds research to eliminate childhood cancer, focusing on less toxic and more effective treatments.
Pediatric Brain Tumor Foundation (PBTF) – Focuses on funding research to find cures for childhood brain cancers, providing support and education for affected families.
St. Jude Children’s Research Hospital – Offers support and research in the fight against childhood cancer, including support networks for parents.
Stupid Cancer – Specifically supports adolescents and young adults with cancer, providing online forums, events, and more.
Ronald McDonald House Charities – Offers housing for families of children undergoing medical treatment, helping them stay near their hospitalized child without the cost of hotel and food.
Pinky Swear Foundation – Provides financial relief to families facing childhood cancer, covering expenses ike housing, food, and transportation.
Make a Wish Foundation – Grants wishes to children with life-threatening illnesses.
Peritoneal Cancer
UT Southwestern’s Peritoneal Cancer Support Services – utswmed.org. Offers a range of support services for peritoneal cancer patients, such as nutrition support, rehabilitation, and cancer support groups.
Prostate Cancer
ZERO Prostate Cancer – Offers a wide range of support services, including online and in-person support groups, financial assistance, and educational resources. Has a strong focus on early detection, treatment, and long-term health. Provides resources for patients, families, and caregivers. Connects people with local support groups and other resources.
Prostate Cancer Foundation – Focuses on research, education, and patient support. Offers resources for patients and caregivers, including information on diagnosis, treatment, and support groups. Provides funding for prostate cancer research and treatment.
Us TOO International Prostate Cancer Education & Support Network – Offers a variety of support groups, including online and in-person options. Provides peer counseling and education about prostate cancer.
CancerCare – Provides free support services for men with cancer, including resource navigation, counseling, and financial assistance.
American Urological Association Foundation – A resource for urological information and support.
National Alliance of State Prostate Cancer Coalition (NASPCC) – Provides educational resources, and information on prostate health.
The Prostate Net – An online forum for prostate cancer patients and their families.
Time to Screen – Promotes early detection of prostate cancer.
Rare Disorders
National Organization for Rare Disorders – rarediseases.org
Sarcoma
Sarcoma Alliance – sarcomaalliance.org. An organization to improve the lives of people affected by sarcoma. Includes trustworthy information, resources, and a safe place to learn and share.
Cure Sarcoma – curesarcoma.org. Resource for all things sarcoma. Mission is to improve outcomes to increase the number of survivors.
Sinus Cancer
Mouth Cancer Foundation – Raises awareness for mouth and sinus cancers and works to increase knowledge about the conditions among healthcare professionals.
Support for People with Oral and Head and Neck Cancer (SPPOHNC) – Focuses on meeting the psychosocial needs of patients with head and neck cancers, including sinus cancer, through various programs and partnerships. They also provide nutrition support through their partnership with Savor Health.
Skin Cancer
The Skin Cancer Foundation – skincancer.org. Information and support for basel cell skin carcinoma, squamous cell skin carcinoma, and melanoma.
Cancer Care – cancercare.org. Assists patients in coping with the emotional & practical challenges of skin cancer.
Soft Tissue Sarcoma
See Sarcoma.
Spinal Cancer
Spinal Cord Tumor Association, Inc. (SCTA) – Run by survivors of spinal cord tumors and provides support, education, and advocacy for patients and families.
ALSF CORD Fund – Affiliated with Alex’s Lemonade Stand Foundation, supports research into pediatric spinal cord tumors, hoping to find cures for children.
Oligo Nation – Specializes in helping individuals with oligodendroglioma, a specific type of brain and spine tumor, by connecting them with specialized care and support.
National Cancer Institute (NCI) – Provides information and resources on rare brain and spine tumors, including a network called NCI-CONNECT for support and collaboration.
Stomach Cancer
Gastric Cancer Foundation – gastriccancer.org. Supporting patient education initiatives and innovative research studies to improve treatments and ultimately find a cure for gastric cancers.
Hope for Stomach Cancer – stocan.org. Creates and runs programs that help gastric cancer patients live the best life through each disease phase.
No Stomach for Cancer – nostomachforcancer.org. A non-profit advocacy organization that advances awareness and education about stomach cancer.
Debbie’s Dream Foundation – debbiesdream.org. Dedicated to raising awareness about stomach cancer, advancing funding for research, and providing support to patients and families.
Substance Addiction
Substance Abuse & Mental Health Services, National Hotline, 800-662-4357
Confidential free help, from public agencies, to find substance use treatment and information.
Suicide Prevention
Suicide & Crisis Hotline, 9-8-8
Testicular Cancer
Testicular Cancer Society, testicularcancer.org, tcancer.org, (955) 390-8231. Raises awareness, provides education, and offers support to fighters, survivors, and caregivers. Focus on early detection and creating a culture of self-examination.
Testicular Cancer Awareness Foundation, testicularcancerawarenessfoundation.org. Focuses on improving the lives of those affected by testicular cancer, educating the public about early detection, and saving lives.
Testicular Cancer Foundation – Provides support, education, and resources for young men and their families, connecting them with medical professionals and other resources.
Dana-Farber Cancer Institute – Offers expert urologists for diagnosis and treatment of testicular cancer.
Throat Cancer
Throat Cancer Foundation – Offers a network of medical and health professionals who can offer expertise and time, along with a list of resources for patients and their families, including information on nutrition, smoking cessation, and stress management.
See also Oral Cancer and Head and Neck Cancer.
Thyroid Cancer
Thyroid Cancer Survivors’ Association – thyca.org. Dedicated to thyroid cancer education, support, awareness, and research fundraising and thyroid cancer research grants.
THANC Foundation – provides information and support for patients with thyroid, head and neck cancer.
American Thyroid Association – thyroid.org
Light of Life Foundation – lightoflifefoundation.org. Provides thyroid cancer patients with medical information and support.
Uterine Cancer
Foundation for Women’s Cancer (FWC) – Supports research, education, and public awareness of gynecologic cancers, including uterine cancer. They also partner with NRG Oncology to make information about clinical trials available.
Look Good Feel Better – Free program to help women in cancer treatment improve their self-esteem and manage their treatment.
Vaginal Cancer
See resources for Uterine Cancer, Vulvar Cancer, Ovarian Cancer, and Cervical Cancer.
Vulvar Cancer
Foundation for Women’s Cancer – foundationforwomenscancer.org
Waldenstrom’s Macroglobulinemia
The International Waldenstrom’s Macroglobulinemia Foundation (IWMF) – Provides information and support for individuals with the disease.